Stem cells anniversary

In eight days it will have been a year since my stem cell replacement. Talk about a roller coaster!! I’ve gone for weeks and felt great just to be knocked back to my knees again and again. Every time I started a new medicine, I would go back down the rabbit hole. That seems backwards I know but the medicine would start fighting yet another disease from the tick and I could literally feel the war going on in my body. I probably got rid of Lyme disease a while back but I also have diseases called Bartonella, Ehrlichiosis, Hashimotos, Borrella, Babesiosis, and the MOST dangerous, Anaplasmosis. So my body goes through hell every time a new medicine is introduced to fight a certain disease.

The good news is I am feeling better. I don’t hurt EVERY day. It’s true that I never know from day to day how I’m going to feel, but I probably have more good days than bad. I’m going and doing a little more. I still have problems with my balance. I certainly can’t dance…one twirl and I’d do a face plant. I find myself listing when I head toward a door and am just as likely to hit the wall as get though the opening! 🤪 But, that being said, as long as I have my trusty cane or Henry Earl, I’m making it ok.

I’m taking thirty two pills and supplements a day and drinking some pretty nasty stuff morning and night, but, hey, if it works I’m sticking with it. I’ve got six more months of that. 🤢

My next adventure (cause I’m sick of the word “journey”) is getting umbilical stems cells in my neck and ankle. If I can get rid of the pain in them, I think I can live with the rest.

I have a consultation on October 29 and I get my shots on November 1. It’s a longer healing time but very worth it.

If anyone out there that reads this and even THINKS they may have Lyme, I want to help. I consider myself an expert at this point and I’ll answer any questions I can. My  email is catfishlil101@gmail.com. If you are in a club or just have a group of people, I will come speak. This has been the worst year so far for ticks and it will touch so many lives. It changed mine entirely so let me emphasize, if you have found a tick on you, please get twenty days of doxycycline and you will be alright. Three years went by before I got a correct diagnosis and as my LA Dr told me, “Every organ in my body has been damaged.”