I got the morning off today. I think I get to go in at one from now on, which is a really big relief.
A good friend of mine asked me about my first symptoms of Lyme disease and I guess I did kinda leave that out of my blog. This is the short answer to that question:
The first symptoms came when I was building our house. I couldn’t walk across a room w/o gasping for air and with all the saws and hammers, I would fall asleep sitting straight up. I just figured it was the stress of building. It got so bad, I went to a cardiologist who diagnosed me with pulmonary hypertension from which there is no cure. But they found they could control mine with a CPAP and meds. But then came the pain. If you have pain in a joint, imagine that ALL over your body. I sat it a recliner for two years, gained 100 pounds, went from Dr to Dr and was diagnosed with Lupus, MS, Alzheimer’s, you name it. I was even told it was all in my head. 72 insurance claims later, a friend brought me a pamphlet and ask me to look at it. I had had two rashes on my body three years before that the Dr told me were yeast rashes. She gave me salve and they eventually went away. They were about 9” in diameter. I opened the pamphlet and there staring at me were my rashes!! They call them bull’s eye rashes. I contacted the professor at MS St who wrote the article. He had moved to Mobile to be near his Lyme Dr and that’s where I went. Over the years I’ve gone blind, not been able to walk w/o a walker, had bell’s palsy, been on a pict line for a year, seeing double, had malaria twice, could not read b/c couldn’t comprehend….its a new day every day and with each treatment I’d get a little better, then fall right back down the rabbit hole. It’s been eleven years.
They make a big deal out here about your day of stem cell replacement. I think H E gets the honor of pushing the needle. They take pictures and tell you it’s the beginning of getting your life back. After all of the people I’ve seen here who have been cured, I now truly believe! When they were trying to get a vein yesterday, I went back to despair for a moment but H was right there, looking at me, telling me it would be alright. We both teared up. It’s an emotional roller coaster ride for both of us. He has not left my side. I finally know what true love is. It took me long enough!!! 😂
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